May 16, 2019 our 4 year old, Kalea Rose, was diagnosed with Moyamoya Disease (a rare brain disease). Consistent with our fears, following a MRI, the neurologist called with the news that our "intuitions were correct". We took a deep breath, and trusted Dr. Smith's knowledge, expertise, experience, and abilities to lead us through Kalea's treatment. We've never looked back or doubted our choice of doctor or hospital. June 2019 she underwent her first surgery, December 2020 she had her second, & August 2021 she had her third.
Kalea's cousin was diagnosed 15 years ago with the same disease (he is currently being treated by Dr. Smith as well), and his family's efforts inspired our event. Without fund raising, genetic testing advances would not have been made.
Our first fundraiser's proceeds went to research on new procedures that Kalea has already benefitted from in her second & third surgeries. We hope to continue contributing towards these efforts.
Thankfully the multiple surgeries has helped, but unfortunately her fight has not. With any progressive disease without a cure, she will be continually dealing with its effects on her body. We're determined to pay forward the fundraising that has benefitted our daughter and so many others. We hope you'll join us as well!